Akkure Genomics
Patient-owned medical digital twins on blockchain — the world's first AI-powered, patient-controlled precision medicine and virtual trials ecosystem.
Akkure Genomics builds patient-owned 'medical digital twins' — secure, blockchain-permissioned virtual copies of an individual's genomic make-up — combined with an AI-powered virtual trials platform that matches patients to personalised clinical trials and research. Founded 2019 to disrupt existing clinical trial structures; covered by The Irish Times and Irish Independent.
Source documents, patent diagrams, deck pages, product renders and press coverage — the primary visual evidence behind this programme. Click any artefact to enlarge.
The same architecture re-drawn in the MedeAIR design system — animated, interactive, and built directly from the original patent and deck artefacts above.
Six layers fused into one patient-owned medical digital twin.
- L01GenomeFull DNA sequencing — patient sample.
- L02EHRElectronic health record overlay.
- L03PhysiosomeWearable-derived live vitals.
- L04Digital TwinPatient-owned virtual copy.
- L05BlockchainDynamic smart-contract permissions.
- L06Trial MatchQuantum Consult™-powered matching.
- 2019
Founded
Prof Oran Rigby founds Akkure Genomics to invert the commercial gene-sequencing model — patient-owned data, blockchain-permissioned access.
- 2020
Quantum Consult™ integration
Akkure deploys Quantum Consult™ as its tele-trials matching engine, connecting patients to specialists and clinical trials.
- 2021
UCD Nexus base
20-strong research team established at the UCD Nexus innovation hub.
- 2022
Find Akkure launches
Project launched with RCSI and FutureNeuro. Twin cost reduced from €400 → €100 for the first 100 patients per condition.
- Nov 2022
National media
Irish Independent feature (Eilish O'Regan) on the digital twin cure-research initiative. The Irish Times feature on the patient-controlled DNA platform.
- 2023+
Operating at scale
Patient enrolment live across MS, motor neurone disease, Duchenne muscular dystrophy, epilepsy and cancers.
Akkure was founded in 2019 by Prof Oran Rigby after close relatives were diagnosed with inheritable, progressive chronic disease. Its thesis: precision medicine breakthroughs depend on access to large, condition-specific DNA datasets that today's commercial gene-sequencing and ancestry businesses extract from patients without true consent or ownership. Akkure inverts that — patients own the data and decide which researchers or pharmaceutical sponsors can access it, governed by dynamic smart contracts.
The Find Akkure project, launched in partnership with the Royal College of Surgeons in Ireland and FutureNeuro, invites patients with the same disease — initially MS, motor neurone disease, Duchenne muscular dystrophy, epilepsy and cancers — to be 'genetically twinned'. Akkure subsidises the first 100 patients per condition, reducing the cost of a medical digital twin from €400 to €100.
The platform fuses genomic data with electronic health records and wearable-derived 'physiosome' vital signs, then powers the Quantum Consult™ tele-trials engine. The result is the world's first AI-powered, blockchain-enabled clinical trials platform — targeting an industry worth over USD 90 billion. Storage is on Microsoft Azure Cloud Platform; permissions are governed by patient-controlled blockchain smart contracts.
- Patient-owned medical digital twins
- Genomic sequencing & bioinformatics
- Blockchain-permissioned data access
- AI-powered virtual clinical trials
- Patient-physician matching (Quantum Consult™)
- Physiosome capture via wearables
Chaired by oncologist Prof John Crown — "the future of precision medicine will be deploying DNA data at scale to establish why people get ill, how disease affects them and how to cure them."
The Irish Times (Dominic Coyle) — 'Irish medtech Akkure looks to chart genetic make-up of patients'. Irish Independent (Eilish O'Regan, Health Correspondent) — 'Patients with same diseases sought as part of digital twin cure research'.
Royal College of Surgeons in Ireland; FutureNeuro SFI Research Centre for Chronic and Rare Neurological Diseases; UCD Nexus innovation hub.
Microsoft Azure Cloud Platform with blockchain-permissioned access and dynamic smart contracts placing data control with the patient at every stage.
- The Irish TimesIrish medtech Akkure looks to chart genetic make-up of patients
- Irish IndependentPatients with same diseases sought as part of 'digital twin' cure research
- Royal College of Surgeons in Ireland (RCSI)
- FutureNeuro SFI Research Centre
- UCD Nexus
- Microsoft Azure
Royal Flying Doctor Service
National strategic review reframing aeromedical retrieval as a virtual critical care network — a decade before virtual care became standard.
Quantum Consult™
Patented multimodal pre-consultation engine — adaptive video, audio and text intake that matches patients to specialists and clinical trials.
HomeGenie
Patented home testing platform using computer vision and machine learning to verify identity, sampling compliance and test results.